Cannabis-based drug testing in a given brain tumor treatment goes on

Ryan Gorman, a 26-year-old man from Dublin, became the first patient to receive the cannabis-based product CannEpil through the Irish Medical Cannabis Access Program (MCAP).

MCAP was introduced four years ago and is the first product prescribed under this system. It was only announced in 2021 that Cannepil will be the first product available. CannEpil is a high CBD, low THC formulation developed by MGC Pharmaceuticals.

Talk to Cannabis health, Ryan’s father, Brendan, said, “Hopefully this will reduce his seizures and move his life to a higher quality place.”

Ryan Gorman is the first patient to receive medical cannabis through this program

Currently, there are about 37,000 epilepsy patients in Ireland. Of this number Brendan It is estimated that 800 patients have the same type of epilepsy as Ryan and are candidates for MCAP.

Ryan developed a seizure only 15 months after birth. He is currently in his mid-twenties and is currently experiencing clonic tonic seizures and absence seizures twice daily.

“He developed febrile seizures at the age of 15 months. These were very serious life-threatening seizures,” Brendan said.

“Initially, they provided him with standard antiepileptic drugs, epileptic drugs. He was still here, so they kept him alive, but they didn’t have seizures in good places. They did not control them to some extent. “

“His seizures were very long and very physical. I am very worried because a standard seizure can lead to death.”

Brendan emphasized that there is a constant risk to Ryan’s safety as a result of epilepsy.

Ryan’s height means that his tonic-clonic seizures can be difficult for the caregiver to physically manage. Brendan had been waiting for surgery for five years because of the hernia he supported from dealing with Ryan’s seizures. He delayed surgery twice while waiting for news about Ryan’s access to medical cannabis.

Brendan explains: “There are two types of seizures that Ryan has. One is called an absence seizure, which lasts about 15 to 20 seconds and lasts regularly throughout the day. In terms of where you are. There is a risk. If you are on an escalator, he could simply fall, or if he was climbing the stairs at home.

“The second type of seizure, clonic tonic-clonic seizures, is incredibly physical, but also life-threatening and dangerous. They can last 12 to 16 minutes and he is 6 feet. 4. He’s a grown-up man who turns 27 in December, so over the years they’ve become more prominent. “

Seizure control

As the seizures became more difficult and there were no signs of drug control, Brendan was interested in what medical cannabis could offer Ryan. He wasn’t interested in cannabis before, but he was anxious to access alternative treatments that might work.

“What else can I do if I have a child, son, sister, or sibling who is unbearably suffering from a medical illness of dysfunction? If this is a treatment that does not adversely affect the person taking it. For example, after it was legalized, it was the only option for us. It’s natural to do it. “

He added: “I’m still not sure if that will be a success story, but the information on the ground is that it worked for many people in many different countries. When it comes to the use of medical cannabis, Ireland is the Netherlands. , Belgium, and even from the perspective of South American countries, lags behind that perspective. “

Brendan incredibly hopes the drug will have a positive effect on Ryan. Ryan has not yet started taking Cann Epil, as it was granted only on Friday, November 19th.

“All we can do is expect the prescription to have the desired effect. I handed it over to Ryan’s consultant neurologist at St. James Hospital in Dublin, and he Has been behind the idea since we first talked about it over two years ago. He said Ryan would be a candidate if it was legalized, but his only The concern was the level of THC contained in it. “

Ryan’s consultant is Dr. Colin Doherty. St. James Infirmary.. He became the first doctor to prescribe through the program. He was one of many neurologists who expressed concern about it for the next level. THC Included in the proposed product for prescription. CannEpil is a high CBD, low THC product and so far MCAP..

HSE has confirmed that in the last few weeks, three patients, all considered to be adults, have been added to MCAP.

There is widespread criticism that the program does not include adequate conditions, especially chronic pain. Currently, only cannabis prescriptions for chemotherapy, multiple sclerosis, and epilepsy-induced nausea are permitted. There have been many attempts to make more products available, but so far CannEpil I am successful.

Cann Epil and seizures

Brendan closely monitors Ryan as he starts Cann Epil. He is positive about prescriptions, but is cautiously optimistic about the benefits.

He states: “I’m going to administer this in small increments on my own. I’ll monitor him to see how it affects him and if it’s beneficial. It’s a seizure profile. Includes a small percentage of THC that is known to counteract and reduce it. It may be at a higher level than the neurologist wanted, I agree, We’re in a place where we have no other choice. This illness he has is life-threatening, so when you ask yourself, it’s something parents have to make with some difficulty. , What other options do you have? “

Brendan goes on to say: “That’s great news in terms of how it benefits Ryan and others. I don’t want to fall into the belief that this is a silver bullet, but I want to keep hope. You. You need to apply logic as well as emotions. When you receive really good news, everyone feels some euphoria, but then the dust subsides. This is because it’s so transitional now. Hasn’t been resolved yet. I’m very happy after all these years because it depends on the hard work of the protesters, including me. “

Protest and access

Brendan would like to thank Ginokeny, a former Kuomintang TD who has fought to make medical cannabis more accessible to patients. It’s been a long way, more than five years, since he submitted it to our government.

He also acknowledges the role of cannabis activist Vera Toomy.

“Bella showed the true spirit of walking all the way to Dublin,” he added.

“When you have a child, it’s the driving force. You may be an ordinary person, but if something like this arrives at your doorstep, you’re from somewhere to be proactive. You need to gain strength. It would be great if Ryan would benefit and it would benefit others as well. “

Talk to Cannabis health, Kenny commented: “This is an important milestone for families and activists who have highlighted this issue for the past five years. Many of us are very critical of MCAP and its limitations. Those who are first accessible via prescription. Hopes to represent others in need of legal and medical access to this treatment. “

Cannabis-based drug testing in a given brain tumor treatment goes on

Source link Cannabis-based drug testing in a given brain tumor treatment goes on

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