So many people live with invisible disabilities. This has a huge impact on them, but you probably don’t know unless told.
That artist Tracey Emin We publicly talked about the experience of wearing an artificial bladder bag to raise awareness about life with disabilities, which is often misunderstood.
Emin recently underwent a series of major surgeries after being diagnosed with advanced bladder cancer, including total hysterectomy, removal of the urethra, bladder, lymph nodes, and parts of the vagina and intestines.
Currently, she has no cancer, so she uses her platform to talk about the physical and psychological consequences of wearing an artificial bladder bag. This should be used by her for the rest of her life.
In an interview with Parents The 57-year-old confession artist said: “Having an artificial bladder bag is very disadvantageous for many reasons and is something most people want to keep secret. Basically, you are happening outside your body. It’s very private because it has some of the physical functions.
“It leaks and things happen. I went out in public somewhere and it could happen. And people said I was angry with myself or I was drinking You will think. “
An artificial bladder pouch is a surgical bag used to collect urine after bladder surgery. patient People who are unable to fully utilize their bladder are fitted with a stoma, which is an opening in the abdomen that connects to the urinary system to drain excrement out of the body and empty it by hand.
In a previous interview with BBC Newsnight, Emin said that the artificial bladder bag had to be emptied every 20 minutes, which was a major obstacle. Still, because it’s hidden from sight, many don’t understand the catastrophic consequences of it. For people’s daily life.
“For many people, getting used to wearing the bag properly is a practical factor, so there is no leak. Accidents can occur until you get used to touching the stoma area,” he said. Danny Bell, McMillan’s Strategic Advisor, said. Treatment, medicine, genomics.
“This can adversely affect a person’s confidence in going public. There is always concern that the bag may need to be emptied, even after getting used to installing it.”
She explains that people with this invisible disability experience a layer of stress and anxiety when they leave home, which may not be fully understood by friends and family.
“Many people always feel that they need to plan ahead before leaving home, make sure they are ready to change their bags, and carry a change of clothes in case of an accident,” she continues. I will. “They may also need to check where public toilets are available.”
People with stoma not only have to deal with the loss of control of urinary function, but can also have a significant impact on self-confidence, self-esteem, and identity. “Clothes must be practical because you need to wear something that isn’t tight around your waist. The same is true for underwear,” says Bell.
“It doesn’t change a person’s sexual ability, but it can really affect your own sexuality and your body’s self-confidence. People have changed their perception of your body’s image. You may be worried that you may not find it attractive. “
She says that the voices of celebrities and public figures who share personal experiences like Emin are very important in raising awareness and educating people about the demands they make in their daily lives.
“If an accident happens in a public place, it can cause frustration and embarrassment, so it’s very difficult to be okay, so getting someone like Tracey Emin to talk to you is that. It helps get rid of taboos, “says Bell.
“Many people live with colostomy or urinary bladder that can lead to difficult situations,” she adds. “People’s reactions must be kind and judgmental,” she says.
About 10,000 people are diagnosed with bladder cancer each year, making it the tenth most common cancer in the UK. NHS If you recently put on an artificial bladder, Bell says there is plenty of support available.
“The important thing is that with proper planning and support, people can do whatever they want with an artificial bladder bag. A stoma nurse that supports how to manage difficulties is important. But peer support can also help.
“McMillan has a huge online peer support forum where people can sign up anonymously. Many people understand the obstacles of hearing about other people’s experiences rather than trying to overcome them themselves. Says it’s a much easier way to do it.
“There’s a lot of practical advice out there, including the best underwear and clothing brands that are most comfortable to wear with an artificial bladder bag.”
Bell adds that there is also a face-to-face support group. “You can put your zip code on the McMillan website to see if there are stoma or bladder cancer groups in your area.
“In addition to our support line, McMillan also has toilet cards and keyrings designed for emergency access to toilets in public. These can be downloaded for free from our website.
“For the past few years, we have boots and mark & Spencer – To raise awareness of how cancer treatment affects bowel and bladder function. “
Why Tracey Emin is so important to talk about artificial bladder bags
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